Monday, August 17, 2009

All slept well

Aubrey slept well last night and is looing better each day.

This morning she had a pancake and chocolate milk. She is taking her mediation my mouth again and they will take out the middle chest tube.

Dr. Gandhi came in said she is progressing well and wanted us to keep her on her recovery schedule of walking around.

Cambrie came by this morning and her and Jennifer went down for a bite to eat.

I am camping out finishing up my Cub Scout training.

Sunday, August 16, 2009

Getting ready for bed

It looks as though Aubrey will be sleeping well tonight. We had her walk down the hall today to pick out a movie. She ate some Cheerios and drank Dad's concoction of Cranberry and Apple Juice.

Tomorrow they should be pulling out the chest tubes and heart pacer leads.

Sleep night little girl.

Finally some pictures from the hospital
















We have been relocated

Aubrey was just too cute for the folks in the CICU, that administration decided to move her because she was getting everything she wanted.

Seriously, though we have relocated to a new room with more room to walk around and less monitors. Dr. Gandhi says she is progressing well.

One thing that alarmed Jennifer was when Aubrey's heart rate was elevated to 150-160 when she was upset. That is one of the things we will have to work with her on. She has the tendency to hold her breath when she is upset and that leads to those elevations. Of course it adds to the effect she is trying to bring. Hollywood...watch out.

A very long night

Last night Jennifer took off to go sleep on another floor and I stayed back with Aubrey. It was a long night she only slept at 45 minute intervals.

This morning she woke up with a lot of air in the belly. They just finished pulling out over a liter of air. Then they took out two arterial lines. Aubrey likes that because it now frees up her arms.

Dr. Gandhi has been walking the floor making sure his patients are meeting their goals. I had Aubrey on my lap for 30 minutes to get her used to moving around. After she rests we will have her stand up to walk around a little.

We should be moving to another floor sometime this afternoon. That will be good because her mood has been low. It is not like her to not see a smile or anything. Hopefully once more visitors roll around, that will spark her to at least smile. She hasn't wanted to laugh or anything, that may be attributed to the air she had pushing against everything.

Sorry for the delay in posting, everything took awhile this morning.

Saturday, August 15, 2009

She is still in some pain

Aubrey has been doing well. They are trying to get her up and about. She is now allowed to drink clear liquids and snack on foods she can tolerate.

Her sats still go off the chart when she holds her breath.

Jennifer and I have managed to play some cards together. This is really good to spend time together, sharing in the stress of having a daughter go through this.

On another note, a couple of the docs and nurses had a hard time today. One of the children down the hall went into cardiac arrest and they weren't able to save them. The family was very distraught, however, the head doc on the floor took it the hardest of the staff. When that happens, like yesterday, the staff really try to limit how much the other parents know. This is done in an effort to keep everyone focused on a positive outcome.

Numbers on the Heart Chart

CVP----Central venous pressure describes the pressure of blood in the thoracic vena cava, near the right atrium of the heart. CVP reflects the amount of blood returning to the heart and the ability of the heart to pump the blood into the arterial system.
It is a good approximation of right atrial pressure, which is a major determinant of right ventricular end diastolic volume.

SpO2----Oxygen saturation , commonly abbreviated as "sats", measures the percentage of hemoglobin binding sites in the bloodstream occupied by oxygen. At low partial pressures of oxygen, most hemoglobin is deoxygenated. At around 90% (the value varies according to the clinical context) oxygen saturation increases according to an oxygen-hemoglobin dissociation curve and approaches 100% at partial oxygen pressures of >10 kPa. A pulse oximeter relies on the light absorption characteristics of saturated hemoglobin to give an indication of oxygen saturation. An SaO2 (arterial oxygen saturation) value below 90% causes hypoxemia (which can also be caused by anemia). Hypoxemia due to low SaO2 is indicated by cyanosis.

Premature ventricular contraction (PVC)

Aubrey experienced a PVC, a type of Arrhythmia. This is kind of like missing a beat. It sets off all sorts of alarms, and freaked Jennifer out. They came in and did a 12-Lead EKG to check things out. They are consulting with the Cardiologist right now.

Her blood pressure has been up

Aubrey has been drinking water and tried a lit of solid food earlier this morning, Jello. She vomited it up and since that time her blood pressure has been aove 90. Dr. Gandhi wanted to start her back on the enalypril. When she took that in the liquid form, she vomited again.

Little thing is sleeping well, however, her blood pressure is still elevated.

Bob

One more day in the CICU

Looks like we will have at least one more day in the CICU. She will have the catheter taken out and can get up and walk around. Best of all she can have solid food, pancakes anyone?